Tom Bickerby in the Times is fed up of having the "Our son Alex has Downs. He is gorgeous and we love him to bits, so thanks, but no thanks, for the sympathy," conversation. He feels like walking on the other side of the road when he sees a lesser-known aquaintance coming. Just in case they give him the long, sad look. Again.
Who wants to keep going over it? So this is what I'd do. Say nowt. Not a thing. These people are not close or they would know already. Let Alex do the talking. Alright, so he's a baby at the moment, and not really up to the challenge.
My guess is, he is. One look says it all. He's sleeping, and he's Downs. He's awake, laughing or crying and he is still Downs. Soon his fantastic, loving, happy personality will be such that yes, they will see he is Downs and never give a damn. No explanation necessary. I've met plenty of people with Downs. My best friend's sister was one.
I'm sure there must be mean, crabby horrible Down's people but I've never met one. Let them speak for themselves. Judge them for what they are, then see if you find them wanting.
Ticking you off again - first person language please, Alex isnt 'Downs' he has a medical diagnosis of Downs Syndrome. There are not 'Downs people' you dont refer to adults or children with other diagnosis's by the name of the diagnosis, do you?
ReplyDeleteBut I'm glad that you're talking about Down Syndrome x